The Impact of Long Covid on Relationships

Along with the physical changes long covid brings, there is also a substantial impact on the relationships in our lives. It took my kids awhile to understand that when my body crashes, I need to be left in a rest state to recover, unless there’s an emergency. They see the differences, grieve what once was, and know the impacts this illness has on our life. But whereas they get to see the impacts daily, I often feel that those outside our home struggle to understand how little I am left with to do the things I once did.

Brain fog brings substantial changes. Where I used to remember when people had appointments, procedures, and all meaningful events, my brain can no longer hang onto those details. So where I used to be able to follow up and check in with people, it is rare that I am able to remember long enough to follow up with how those appointments went. It’s frustrating having conversations where I get updates, because I feel like the person on the other end probably feels I don’t care anymore with my lack of follow up or needing to be retold what is happening. But my brain cannot process and recall a lot of the information anymore. My life has to be documented in a calendar. I get asked when something is happening and I need to review the calendar to know. The mental strain of having to enter everything into it is equally draining and it’s frustrating to know that a few minutes after I am told something my brain no longer holds that information close. This one thing makes me feel like less of a mother, daughter, sister, wife, and all the other roles I hold in others’ lives.

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Another aspect involves the massive crashes. When all energy you have in a day is expended from basic tasks such as getting dressed, driving kids to school, and other basic needs, you end up further depleting your energy in the hopes of doing a load of laundry, dishes, or making a meal. So when almost every day you’ve run yourself to empty, it creates limited opportunities for hang outs, visits, phone calls, and things that draw from you even further. Combine this with those crashes where your body can’t properly function and you sleep for extended hours in order to recover, means that everyone, everything, and your life comes to a full stop. All of this makes you feel less than whole and a disappointment to yourself and to others.

I haven’t abandoned people in my circle. I think about them often despite my inability to follow through on connecting or remembering things they’re dealing with. I have numerous messages left unread until such times as I have the energy needed to open and respond, but I leave them unread so I don’t forget who is still trying to reach me. My energy envelope is so limited that basic functions often have to trump connections. It’s the unfortunate result of ending up with a illness that currently has no cure. So as much as I want to remember, reach out, and respond, most days I’m in survival mode and that means basic functions and further isolation from those wondering why I’ve changed.

I’m here. I just can’t often be there anymore.

Stop Saying, “You Look Like You’ve Lost Weight”

A conversation I have had quite a few times over the years with plus sized friends and on forums, is about the phrase, “You look like you’ve lost weight.” Although we know it is often done from a place of love, support, and hopeful motivation, this line is often a trigger to many who are overweight. Of course, there are a handful out there who love that recognition, but the majority of the time, those are people who are publicly on a weight loss journey and enjoy knowing their success is paying off. But there are always many reasons for fluctuations in weight, so for many who are overweight, that phrase is a constant reminder that our physical appearance is at the forefront of others’ minds and it becomes a catalyst for the negative self voice to run rampant in our brains. If someone is on a weight loss journey, they’re more likely to appreciate the comment, but for those who are just going about their life, what you think is a kind statement is actually going to have the opposite effect.

First, there are a variety of reasons weight fluctuates. Weight loss and gain can be signs of depression or other mental health changes, eating disorders, medication changes, age and hormones, changes in diet, illness, disability, and a wide variety of other reasons that aren’t from people purposely trying to lose weight. My friend dealing with cancer talked about how his medications have altered his weight up and down in ridiculous ways and quickly. Most people don’t know he is fighting cancer, so imagine someone saying to him, “you look like you’ve lost weight,” meanwhile he is fighting for his life. For me, learning to adapt to a new disability that doesn’t allow me to really be active anymore has changed my body where I am completely uncomfortable in my own skin again. As I test out different medications they also impact me in different ways, including up and down on the scale. It makes me fearful of someone using this phrase on me when I see them. For many of us, we are fully aware of how our bodies have changed and are changing, and the last thing we want is for someone else to mention it to us and draw attention to something that we already have insecurities about and makes us feel uncomfortable. But the most important thing to remember, weight and size do NOT dictate the health of a person, so there’s no point to comment on it anyway.

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Although the intentions are often from such a positive place, it truly does create an internal, negative monologue for an overweight person who doesn’t want attention drawn to their body. When most overweight people hear the dreaded, “you look like you’ve lost weight,” most of our brains focus on the fact that you are physically watching those changes in our body. It mentally makes us highlight that the most important thing you notice about us is our weight. And the aftermath of hearing this can have a string of negative effects. For some people it can impact an eating disorder they may be battling. Others it makes them incredibly self conscious. Some will fixate on how you must be talking about them and judging how they look when you aren’t around them. That internal voice gets triggered to thoughts like, well they’ve noticed a change in my body, which means if I gain more weight they’ll be disappointed. The internal monologue of an overweight person is often more critical than you could ever imagine.

Some of the people I have chatted with about this topic have lines ready to go for when they hear this phrase or something similar. One of the most common I heard was, “yeah, I was sick,” as the easiest way to get out of the conversation and to make the other person also feel uncomfortable. And I have watched as someone has said this to someone in front of another person. I have never once seen positive body language from this phrase being said, especially around others. Your “positive” acknowledgement of a physical change can create such internal chaos within someone. I saw a video that discussed that unless it is something that can be changed on someone within a minute, like tucking a hair back, or zipping up their fly, you shouldn’t say a thing to someone about their appearance. So whether positive or negative, when it comes to people’s bodies, you should use caution and generally keep your mouth closed. If you really must call attention to someone’s changing body, and noting that sometimes there have actually been no changes or they have actually gained weight too, try using something like, “I really like that outfit on you.” Think of a compliment for them that doesn’t call attention to shape or weight.

And if you are thinking this article is an overreaction, despite it being based on many conversations with others experiencing similar feelings, imagine if we were to start saying things to people like, “Wow, your teeth are looking whiter.” or “Looks like you’ve got some of your hair back” because these would elicit the same types of responses that many feel when they hear, “you look like you’ve lost weight.”

So please remember that although we know the intentions are generally not intended to be mean, the implications are more often than not going to generate a negative response for many that you say, “you look like you’ve lost weight” to. Remember that you don’t know why there is a change with their body either, and you could be saying this to someone who is having weight loss due to an unfortunate reason. Likewise, where you see a loss, there may actually be no change or they may have gained as well. If someone is publicly on a weight loss journey, constantly posting pictures at the gym and telling you they’ve lost weight, then let them know they’re looking super fit and you can see the results of how hard they are working. But otherwise, when it comes to weight, find ways to compliment people that don’t involve their size.

Loving Me As I Am

When he decided his love was meant for me, I don’t think either of us knew the depths of damage from those that tortured my heart before.  So when the big emotions and self doubt rear their ugly head, I can rationalize why I feel certain ways and can pinpoint the choices of others that sometimes make me question my worth, but he always makes sure I am held and reassured that I am more than enough for him as I work to reset my brain back to the present.  And through his actions and words, he continues to teach me what love was always meant to be and help glue me back together when the cracks of self doubt break me open.

You see, before there was him there was not one relationship in my past that made me feel loved for who I am, as I am.  With my ex, I couldn’t talk about how I was feeling without defensiveness and hostility as a response.  I began to fear speaking up. My feelings that he was cheating on me were all in my head… until they turned out true.  Being talked down to in front of his friends was all in my head… except it wasn’t.  When his friend offered to push me down the stairs when learning I was pregnant, it was my fault for being upset and not finding humour in it.  When I begged for time together I was needy and stopping him from going out like he wanted.  Wanting help in the home for a balanced workload, I was just a nag. I came last to friends, video games, and his secret life.   And I was made to believe I was asking for too much and was unworthy of the attention I had craved, while also being labeled as toxic, selfish, and controlling in the stories he told others. 

So now, on those days the tears fall because I feel unworthy of this love I had never known before, my husband reminds me of all the reasons I am worthy.  On the days the tears fall because the voice of self hate is trying to shatter my existence, he reminds me what I need to love about myself and what he loves about me too.  When I feel I am failing as a mother, he reminds me what I do for our kids and how lucky they are to have me.  And when I feel like I am a failure, he reminds me of my successes.  The constant echo that I am not enough rings loudly sometimes, and as my brain tortures me, he puts everything aside to try to drown out the self hate he didn’t create, but wants to help heal. And when my brain is calm, he still reminds me of all this too.  For all of this and more, I am forever grateful. 

I know how lucky I am to have someone who truly hears and validates me.  As insecurities about myself crept in this past while, I could rationalize where it came from, but he held me and reminded me why that voice is wrong. When the fear of being left for not being a girly girl showed up, I could rationalize that my ex husband letting me know my lack of wearing makeup was one of the many reasons he was leaving me as the foundation for the fear.  Once again, absolutely nothing this man had hinted or suggested, but my mind took a simple statement and twisted it through this lens of experience. And once again he reassured me that my fears were unfounded and he loves me for who I am, as I am.  And he included that I can get ready quickly to go out and I don’t have products cluttering the counter as bonuses.  There was never any hesitation to celebrate it being a positive aspect of who I am. Whatever learned insecurity, he is there to argue against it.

In the past, my light was constantly being blown out by those gaslighting my way forward.  But now when my silly self comes out, he’ll tell me, I’m a goofball and it’s always followed by “and I love it.”  Before him, I had never experienced someone who created a safe space that allowed me to be authentically myself. The vulnerability and trust I have with him, allows me to finally become safe in my sophisticated goofball ways and know I am loved completely for it and all the other aspects that make me who I am.

This man came along and showed me faithfulness, honour, respect, and above all, what love should have always been. Someone who actually enjoys spending time with me.  Someone who will pause their game just to come tackle me with a hug, without me having to say anything. Someone who will clean the kitchen when he sees me struggling to accomplish my to do list.  Someone who tells me how much they love me every single day and how he is in this forever with me.  And someone who is empathetic of the past hurt that sometimes makes that feeling of unworthiness surface in waves of doubt that bring on a hurricane of tears.

Although the damage from the past isn’t always cracked open, it still has moments where it resurfaces, creating a vulnerable and insecure me who feels absolutely unworthy of his love.  And although I know that voice was created by others, he steps up even more to reassure me I am perfect as I am. I am not broken, needy, or too much, I am a victim of those who didn’t love me for me and who made me feel shame, unappreciated, and unworthy.  How unfair it is that he has to deal with the negative aftermath others left, but I will always be thankful and grateful for the reassurance that I am enough, even when my brain is trying to trick me into thinking I am not.  And with time I know I will be able to let the voices of the past go and only hear his sweet voice telling me I am enough as I learn to believe it finally too.

Image of a couple embracing in the distance.

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The Doubt Undertow

Those thoughts of I’m not good enough have resurfaced again.  That taught core belief that I’m unlovable as I am.  That learned trauma that I’m good enough for a moment and then someone else will be better is consuming me.  Meanwhile I am in a healthy relationship with an amazing man, who reassures me that he doesn’t want anyone else.  He reassures me he loves me as I am. And no matter my state of being and mind, he is the light that fights the dark thoughts with me.  Yet that taught core belief likes to echo and taunt that he’ll see the truth that I am unworthy.  Part of my worth was taught in my younger years as the voices that I was not good enough bombarded my self esteem.  The other part was taught through relationships, where they cheated, ignored me, blamed me, and showed me I wasn’t enough.

Deep down I know that the actions of others tell me more about those people than they do about myself, but the glue of who I am was built off of those voices and actions and some days it’s incredibly hard to drown them out.  Some days I spiral into thoughts of just how much I am unworthy and disposable and it rips my soul to shreds.  And then my husband sits with better glue and thread and stitches each shred back together to remind me I am not what they taught me I was; I am so much more.

In therapy I work on these voices that try to submerge me into the depths.  The insight into the fractured self and what their needs are to still protect me now are fascinating as an outsider, but heavy in the moments.  I’ve learned a lot about where this insecure, fragile person came from and why she struggles to accept the good in her world.  Some days I win the battle in my head, and other days the battle continues. Some days I wish I could tell those who broke me exactly what they did and how it impacted me, but I also know this would be useless.  I would be left with more scars from their unending uncaring for who I am and their lack of remorse for the trauma they left. 

So I work on me.  I fight for the parts of me that deep down know I am deserving, loveable, and capable.  I fight to not have these waves of despair devour me.  And I fight, because if I don’t, I’m letting the others who broke me win.  And while I fight, I have my light helping guide me back to reality as a reminder that I was and am always deserving of the returned love I put out. It’s a constant reminder that fighting the traumas of my past are worth it for where I am now.  So today I continue to challenge those negative beliefs in hopes that one day I can just enjoy the massive wave of love and good in my life without the doubt undertow trying to drag me back to the parts created from the dark depths of others.

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